Resources

If you have HAE, it’s important to know that there are resources and support out there for you!

HAE patient associations can help connect you to the larger HAE community. They provide information on support, programs, news & events, and real patient stories.

There’s also our self-assessment questionnaire that can give your doctor a better idea of how well controlled your HAE is.

HAE Self-Assessment Questionnaire

The questions below are designed to give both you and your doctor a better picture of how HAE is impacting you. The answers you provide will give your doctor invaluable insights into how well your HAE is controlled and guide decisions around optimizing your care.

How it works:

You can either type your answers into the form or print out a blank questionnaire so you can write on it.

Be sure to bring your completed questionnaire with you to your next doctor’s appointment

HAE associations

If you have HAE, patient associations are great resources. They can help connect you to the larger HAE community, providing you with valuable information about HAE, treatments, programs, news, upcoming events, patient stories, and much more.

Take a look below for a list of HAE patient associations available to you.

References:

1. HAE Canada. What is Hereditary Angioedema (HAE)? HAE Canada website. Available at: https://haecanada.org/what-is-hae/. Accessed on June 27, 2024.
2. HAE International. What causes HAE? HAE international website. Available at: https://haei.org/hae/what_causes_hae/. Accessed on July 28, 2024.
3. BERINERT^® Product Monograph. CSL Behring Canada. February 4, 2020.
4. ^PrFIRAZYR^® Product Monograph. Takeda Canada. December 14, 2020.
5. HAEGARDA^® Product Monograph. CSL Behring Canada. April 13, 2022.
6. ^PrORLADEYO^® Product Monograph. BioCryst Pharmaceuticals. June 2, 2022.
7. ^PrTAKHZYRO^® Product Monograph. Takeda Canada. March 22, 2021.
8. ^PrCYKLOKAPRON^® Product Monograph. Pfizer Canada. September 10, 2018.